Dedicated In Tribute to Ann Camden, Co-Chair of Patient Advocate Advisory Board

LBCA dedicates the October 15th Global Breast Cancer Awareness Campaign in honor of Ann Camden, who championed the idea during her time on the Patient Advocate Advisory Board (PAAB); Ann passed away on July 18, 2024.

Ann was diagnosed with invasive ductal cancer in 2009, and in 2016 with another primary cancer, lobular, that had spread to her bones, lymph nodes and a pleural effusion. After her diagnosis, Ann maintained a blog, Down-Not-Out, where she shared her journey with cancer. Ann was an active advocate for LBCA. She was part of a small group of committed volunteers who shared their time, experience, and expertise to develop a patient experience survey on metastatic invasive lobular carcinoma (mILC). The anonymous survey was used to raise awareness about the experiences of patients with mILC, and the critical need for more research. In addition Ann also lent her skills in communications and marketing to LBCA initiatives. She provided input on and developed a first draft of a one-page document raising awareness of breast cancer subtypes and how they all need focused research, and she co-authored a letter about lobular breast cancer that was used in outreach to breast cancer program leadership at cancer centers across the country. LBCA honored Ann in 2022 for all of her work on the PAAB and for Lobular Breast Cancer patients.

Click here to read more about Ann’s life.