Updated April 2018

Content or links on the LBCA website are not intended to provide medical advice, diagnosis or treatment.  This content is not intended to be a substitute for professional medical advice, diagnosis or treatment. The LBCA website is designed for educational and informational purposes only. The information provided is general in nature. For answers to specific health care questions or concerns, you should consult your healthcare provider(s), as treatment for each patient varies with individual circumstances.

The content is not intended in any way to be a substitute for professional counseling or medical advice. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.  Never disregard professional medical advice or delay in seeking it because of something you have read on this website.  LBCA recommends that patients accessing information on this site use it as a resource to help ask good questions of their medical teams, and work together with their medical teams for the care best for them and their specific circumstances.

While the LBCA endeavors to keep the materials on the site current, healthcare information changes rapidly and thus, the materials on the LBCA site should not be relied upon to be fully comprehensive or error free.

LBCA links to outside sources for informational purposes and to provide convenient access to materials and programs that might be useful for the site user.  However LBCA does not control the content or actions of these external sites. LBCA does not make any warranties or representations of any kind with regard to the accuracy, completeness, timeliness, quality, efficacy or non-infringement of any of the programs, materials, webinars, videos, publications, articles or products or other information provided on the site, or by the companies or organizations linked or referred to in the site.

LBCA also links to social media sites housed on Facebook, and patient networking portals hosted by outside organizations as a resource for those patients who might want to join online communities to communicate with other patients who have ILC for patient-to-patient support.  However, LBCA does not administer these social media forums, and we do not review or edit the content posted there for accuracy, and are not responsible for the material that is posted or shared on these sites.  We would encourage all patients to take any information they find on any social media forums to their medical team for personal medical advice.

The Lobular Breast Cancer Alliance shares educational information about ongoing clinical trials for patients with lobular breast cancer.  LBCA do not sponsor or run the clinical trials, and the scientific validity and safety of the trials is the responsibility of the trial investigators.  Patients should always discuss their participation in any clinical trial directly with their doctor and learn more by contacting the clinical trial coordinators listed above directly.  Learn more about participating in clinical trials.

Limitation on Liability
AS PARTIAL CONSIDERATION FOR YOUR USE OF AND ACCESS TO THIS WEB SITE, YOU AGREE THAT: (I) IN NO EVENT WILL LBCA OR ANY OF ITS SUBSIDIARIES, AFFILIATES AND/OR ASSIGNS OR ANY OF ITS DIRECTORS, OFFICERS, AGENTS OR EMPLOYEES OR ANY OTHER PARTY INVOLVED IN CREATING, PRODUCING, OR DELIVERING THIS WEB SITE OR ANY SITE LINKED TO THIS WEB SITE, BE LIABLE TO YOU IN ANY MANNER WHATSOEVER FOR ANY DECISION MADE OR ACTION OR NON-ACTION TAKEN BY YOU IN RELIANCE UPON THE INFORMATION PROVIDED THROUGH THIS WEB SITE; AND (II) LBCA SHALL NOT IN ANY CASE BE LIABLE FOR ANY DIRECT, INDIRECT, SPECIAL, INCIDENTAL, CONSEQUENTIAL OR PUNITIVE DAMAGES FOR ANY CLAIMS OR LOSSES, EVEN IF LBCA HAS BEEN ADVISED OF THE POSSIBILITY OF SUCH DAMAGES.

PRIVACY POLICY

LBCA collects email addresses, first names and zip codes/country locations of individuals who opt-in to receive news and updates.  Only an email address is necessary information to provide to receive emails.  We do collect optional first names so our emails can be personalized to be less likely to caught in spam filters.  We collect optional zipcodes/country to enable us to send emails that might be of interest based to users in a specific geographic area, for example to alert them of a local event that may be of interest to subscribers or of clinical trial or other research opportunity.

Users can unsubscribe from future emails or to change their subscription at anytime using the unsubscribe feature on the email.  LBCA uses the email service Mailchimp to send and manage its emails.  LBCA will not sell or rent your email address, or share it with other organizations or individuals without your consent.

LBCA does not use cookies in order to customize this site for return visitors.  External sites linked to this website or to emails we send out may use cookies, including third-party widgets such as YouTube or Flickr which may install cookies depending on their configuration.

We use a tool called “Google Analytics” to collect information about use of this site. Google Analytics collects information such as how often users visit this site, what pages they visit when they do so, and what other sites they used prior to coming to this site. We use the information we get from Google Analytics only to improve this site. Google Analytics collects only the IP address assigned to you on the date you visit this site, rather than your name or other identifying information. We do not combine the information collected through the use of Google Analytics with personally identifiable information. Although Google Analytics plants a permanent cookie on your web browser to identify you as a unique user the next time you visit this site, the cookie cannot be used by anyone but Google. Google’s ability to use and share information collected by Google Analytics about your visits to this site is restricted by the Google Analytics Terms of Use and the Google Privacy Policy. You can prevent Google Analytics from recognizing you on return visits to this site by disabling cookies on your browser.

Emailed questions and requests sent to info@lobularbreastcancer.org or any other email addresses ending @lobularbreastcancer.org will be responded to by volunteers for LBCA, and the email and content will be used only as needed to respond to the request as best we can.   LBCA cannot provide medical or treatment advice or referrals to medical providers.   We discourage users from emailing sensitive personal or health information to us, and encourage you to communicate your health questions and concerns directly to your medical team.

If compelled by law to disclose information, we will comply with those orders.

This privacy policy will be updated periodically, and the date of the update will posted at the top of this page.

ABOUT LBCA

The Lobular Breast Cancer Alliance is a project of Social and Environmental Entrepreneurs (SEE), a registered public charity in California.  Social and Environmental Entrepreneurs (SEE) was formed in 1994 as a 501(c)(3) nonprofit organization. For 22 years we have been providing support services to start-up nonprofit projects in order to alleviate the initial obstacles faced when transforming a project vision into a reality.  SEE serves as the administrator for LBCA to enable LBCA to grow with administrative assistance and with the ability to raise tax-deductible donations and except grants from foundations.  All donations made to LBCA incur a 6.5% administrative fee to cover administrative costs.  SEE processes and houses all credit card information from donations, and maintains records of all donors to LBCA/SEE.  Contact SEE for more information.

Contact the Lobular Breast Cancer Alliance:  LBCA/Social and Environmental Entrepreneurs 23532 Calabasas Road, Suite A  Calabasas, CA 91302  info@lobularbreastcancer.org