Patients, researchers and clinicians…
increasing our knowledge of lobular breast cancer
working together to advance diagnosis, treatment and follow-up care for patients

OUR GOALS:   Advance ILC Research;  Build Organizational Partnerships;  Educate about ILC

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About Lobular Breast Cancer

Invasive lobular breast cancer (ILC) is the sixth most common cancer of women in the US with 39,000 new patients diagnosed each year.  

Research indicates that ILC is a unique subtype of breast cancer with distinct biological and behavioral differences. It’s time to advance research and refine treatments for patients with lobular breast disease.

  • Did you know … Lobular breast cancer is the sixth most common cancer of women

    "More than 39,000 patients will be diagnosed with ILC in 2018 in the US. It's time to bring lobular breast cancer out of the shadows and do the research to better understand this disease and how to care for the patients living with ILC."

    Washington ILC patient advocate

  • Did you know … ILC can go unseen on mammograms resulting in diagnosis at a more advanced stage.

    "My tumor was 7.3 cm (approximately 3 inches in diameter). It grew so slowly that I failed to realize it was there, despite self breast exams. It was not visible on mammogram or ultrasound. Ultimately it was seen on MRI. I had a modified radical mastectomy, because lobular carcinoma is less responsive to neoadjuvant chemotherapy."

    Pittsburgh ILC Patient

  • Did you know … Symptoms of ILC can be thickening or swelling, skin texture or nipple changes or breast pain.

    “My lobular cancer was not a lump. My cancer was a thickening that I initially thought was a bruise from a fall. Even my primary doctor ignored it. But it didn’t go away and I finally had it biopsied. Stage IIA Pleomorphic ILC.”

    California ILC patient

Advance ILC Research

RESOURCE LIBRARY

News + Events

Meet Patients with ILC

Facebook Groups

Lobular Breast Cancer (ILC) Invasive Lobular Carcinoma

Support for People with Metastatic Lobular Breast Cancer

External Sites

(BreastCancer.org) Forum 71: Invasive Lobular Breast Cancer

(Inspire.com) Metastatic ILC in the Abdomen/GI Tract Discussion Group

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