"I will continue to follow the Lobular Breast Cancer Alliance ... The information has been critical to my journey. My go-to place over the past year."

LBCA website subscriber, early-stage ILC patient

"After treatment for advanced bilateral ILC 20 years ago, I knew I had high risk for recurrence. Oncologists wisely kept me on aromatase inhibitors to suppress estrogen. Increasing irritable-bowel GI symptoms sent me to GI doc to no avail, and pelvic ultrasounds by GYN docs saw nothing. Finally an incidental scan showed masses surrounding my ovaries. I was never warned ILC "likes" abdominal tissues."

Washington metastatic ILC patient

"More than 39,000 patients will be diagnosed with ILC in 2018 in the US. It's time to bring lobular breast cancer out of the shadows and do the research to better understand this disease and how to care for the patients living with ILC."

Washington ILC patient advocate

"My tumor was 7.3 cm (approximately 3 inches in diameter). It grew so slowly that I failed to realize it was there, despite self breast exams. It was not visible on mammogram or ultrasound. Ultimately it was seen on MRI. I had a modified radical mastectomy, because lobular carcinoma is less responsive to neoadjuvant chemotherapy."

Pittsburgh ILC Patient

“My lobular cancer was not a lump. My cancer was a thickening that I initially thought was a bruise from a fall. Even my primary doctor ignored it. But it didn’t go away and I finally had it biopsied. Stage IIA Pleomorphic ILC.”

California ILC patient