Goal 1 Objective and Sub-objectives: Raise Awareness and Educate about ILC and Need for ILC Research

1. Sub-Objective -Increase Accessibility of LBCA Resources (Materials and Video Recordings of Events)

• • Outreach to make non-English speaking ILC patients aware of LBCA resources and explore other ways to translate content for non-English speaking visitors.
  • Conduct webpage improvement projects annually
  • Translate new patient resources into 15 foreign languages
  • Post/disseminate the slides and recordings from all LBCA-sponsored virtual events.

2. Sub-Objective – Expand (and Measure) LBCA’s Reach vis a vis New Audiences and Media

• ID new strategies for disseminating LBCA materials (new and existing) including those regarding October 15th global lobular breast cancer awareness day more broadly
• Continue to support growth of LATS, and local advocacy
• Continue to increase social media presence including with paid ads and evaluate ROI
• Continue to develop and implement strategies to reach breast cancer centers and organizations around the US and urge/convince them to share LBCA’s URL and educational resources about ILC
• Seek congressional resolution re Oct 15th national lobular breast cancer awareness day and assist others in requesting and obtaining governor proclamations
• Create materials to promote and publicize the launch of new lobular breast cancer programs at cancer centers
• Begin to sell LBCA branded merchandise to increase public awareness of ILC

3. Sub-Objective Raise awareness of ILC and LBCA and need for more ILC research among clinicians/researchers

• Continue to sponsor ILC-focused sessions at major cancer conferences (eg. SABCS, Miami Breast, ASCO annual meeting, ILC Symposium, ESMO)
• Reach out to associations through which to share general Ed. information about ILC
• Conduct at least one ILC patient experience survey a year highlighting critical ILC issues for presentation at a cancer conference
• Develop a manuscript that uses data from across our past posters and seek publication
• Assist SEER to update report on ILC incidence data (ILC Breast Cancer Stat Facts)
• Work with SAB members on disseminating LBCA’s ILC resources to patients and adding LBCA logo to their ILC presentations. Assist SAB members in collaboration on ILC Studies
• Launch annual LBCA ILC lectureship series for clinicians at UTHSA
• Work with ILC experts to develop ILC curriculums/offer through MSKCC for CMEs
• Work with MBCAlliance or METAVIVOR re ways to get cancer recurrence data collected.

4. Sub-Objective Provide and keep updated educational materials about ILC for ILC community

• Continue to produce lay recaps of ILC Symposiums and develop new downloadable resources, including ILC imaging manual with input from PAAB and private ILC FB groups
• Develop fact sheet on liquid biopsies and ILC and with SAB, create webinar series
• Work with SAB to develop white paper on new and promising “targets” for ILC treatment development and a basic science FAQ.

Goal 2 Objectives: Be Go-To Source for ILC Research Findings and New Treatments/Clinical Trials

• Update publications library with new work at least twice annuallywith SAB guidance
• Update website page highlighting SAB member current research regularly
• Share new ILC findings via all of LBCA media platforms and private ILC FB groups
• Launch process to fund SAB members’ publication of ILC research with open access. ID key scientific journal publishers that will provide open access to ILC published studies
• Routinely update current list of clinical trials accepting ILC patient enrollment.

Goal 3 Objectives: Support ILC Patient Research Advocacy and Ultimately, ID
and implementation of ILC-specific Treatment guidelines

• Maintain/grow ILC Advocate Registry and publicize both researchers and ILC community
• Provide at least 20 scholarships for ILC advocates to attend major breast cancer conferences and share write-ups of their experiences on LBCA website to aid others
• Develop, present, record and share on website at least four new Lobular Breast Cancer research Chats/year to provide tools for ILC awareness raising and research advocacy
• In all LBCA grant solicitations encourage ILC researchers to build funds for working with patient advocates into their budgets
• Share advocacy learning opportunities regularly with ILC Advocates
• Support ILC patient advocates joining breast cancer research consumer review panels
• Initiate campaign to urge NCCN to promote adoption of lobular specific guidelines
• Develop an ILC research advocate mentoring program
• Create training program on ILC science & patient advocacy for viewing on LBCA website
• Disseminate info on LBCA’s ILC patient advocate trainings to other advocate groups
• In FY 25/26 Help connect interested ILC patient advocates with SAB members in their geographies to tour their labs, assist them with grants etc.

Goal 4 Objectives: Build Alliances Among U.S./International Breast Cancer Advocacy Orgs to Jointly Promote/Support ILC research

• Participate in ILC Symposium planning
• Conduct awareness raising initiative with sister breast cancer organization each fiscal year
• LBCA staff and representatives participate in new patient advocate groups to raise the issue of the need for more ILC research. Add one new collaboration during each fiscal year
• Encourage and publicize launch of new ILC breast cancer programs at major cancer centers
• Collaborate with Lobular UK, Canadian Advocates, ELBCC Advocates, and Australian/ New Zealand (LBCAustralia the informal group) and ID new with which to plan global events and ways to publicize them before and on Oct 15th, Global Lobular Breast Cancer Awareness Day.

Goal 5 Objectives: Promote and Fund ILC Research

• Fund at least one ILC research grant solicitation/FY in collaboration with other organizations
• Continue annual LBCA merit scholarship award for best 5 ILC abstracts presented at SABCS.