Patient Information
Information for Patients with Lobular Breast Cancer
Also known as Lobular Breast Cancer, ILC is the 2nd most common subtype of breast cancer after invasive ductal carcinoma (IDC).Â
- About 15% of all breast cancers diagnosed in the U.S. each year are lobular.
- One of the most unique features of most ILC tumors is the fact that they often do not form a lump due to the absence of the protein E-cadherin, making ILC much harder to detect with screening, advanced imaging, and self-exams.
- Despite a generally good prognosis, some studies suggest an increased risk of late recurrence (after 5 years). Read more ILC Facts here.
The materials provided here were compiled for use by individuals with invasive lobular carcinoma (ILC) and their loved ones.
LBCA does not attempt to duplicate current information about general breast cancer available on other websites. LBCA provides specific information, including graphics and downloadable pdfs, about ILC and treatment, and sample questions specific to lobular breast cancer that patients may wish to discuss with their care teams.  LBCA strives to keep this site current as new information and research findings become available.
Lobular Breast Cancer In-Depth Brochure
This brochure contains an overview of ILC, its key features, how it differs from other types of breast cancer, as well as current information on imaging. It also contains a list of publications and the resources LBCA provides to all who are interested in understanding ILC and patient advocacy. The brochure is available in both a digital version to share online and as a download to print and has been translated into 19 languages.
This one page flyer includes explains the difference between Invasive Lobular Carcinoma (ILC) and Invasive Ductal Carcinoma (IDC) and compares the difference in cancer cells.
This one page flyer includes an overview of Lobular Breast Cancer, who LBCA is, and why more research is needed. It is available digitally to share online or to download to print.
This one page flyer includes an overview of the different subtypes of Breast Cancer.
To learn more about the various types of tissue donation to support breast cancer research, this patient resource guide provides basic background information, suggested questions for your institution, and sample programs in the US and around the world.
