Ground Floor Opportunity for Seasoned Professional!
The Lobular Breast Cancer Alliance (LBCA) is on the brink of going from being a small, all volunteer group to becoming a high-impact, independent charitable organization focusing on educating and advocating about invasive lobular carcinoma (ILC) and the need for ILC research and attaining our vision of eradicating ILC permanently. We seek an experienced, entrepreneurial individual to be our part-time Development Director to help us achieve this bold endeavor. Our ideal candidate is a seasoned professional who is familiar with and relishes the challenge of launching small non-profit start-ups, who is committed to LBCA’s mission, and who is interested in understanding the science of breast cancer.
Background ON LBCA
The Lobular Breast Cancer Alliance (LBCA) engages patients, clinicians, and researchers to increase knowledge of lobular breast disease and promote lobular breast cancer research. Working with the guidance of an international, expert scientific advisory board of breast cancer researchers and clinicians, and through growing collaborations with other breast cancer advocacy organizations in the US and internationally, LBCA provides a platform for ILC research, maintains a library of current lobular breast cancer studies, and identifies clinical trials and research advocacy opportunities with a focus on lobular breast disease.
LBCA provides and disseminates widely, basic, current educational information about ILC including early stage and metastatic lobular breast cancer, to enhance understanding about how lobular is different from other breast cancer sub-types, and to share any new knowledge gleaned from recent research. LBCA aims to empower patients to be more informed partners in their self-care and treatment and help clinicians to be more informed and confident in the treatment plans they promote. LBCA also fosters dialogue among clinicians and researchers to address challenges of detecting and treating ILC, discuss groundbreaking findings, and identify new ILC research priorities and opportunities for collaboration.
Until 2020 LBCA was all volunteer run but now has a small, paid staff who work remotely, and a handful of volunteers who are patients with ILC or their loved ones, and others who have volunteered with LBCA to support our mission and vision.
LBCA has raised sufficient funds in the past year to be able to provide ILC research grants to early investigators. It does so through administrative contracts with two organizations that assist with the vetting and oversight of grant applicants/awardees. LBCA hopes to bring this function fully in house in the next three years.
LBCA is not yet an independent, charitable organization but is a fiscally sponsored organization with 501(c)(3) tax exempt status as a project of Social and Environmental Entrepreneurs (SEE), a registered public charity. LBCA has incorporated, recruited a board of directors, and has filed paperwork requesting tax exempt status with the IRS in March 2021 and anticipates approval in 2021.
All support and funding for LBCA’s operations comes from generous donors, including patients with lobular breast disease and their loved ones, grants, foundations, and contributions from other 501(c)(3) not for profit organizations. LBCA seeks funding, ideally over $300,000 in the next 12 months to support the shift to independent charitable status and ability to continue to fund ILC research grants directly.
LBCA has a growing donor base of individuals who are predominantly persons whose lives have been touched by ILC. We also have over 3800 e-newsletter subscribers, and new subscribers and volunteers are signing up every day from all over the US and the world. LBCA maintains a website, two Facebook pages, a twitter account, and a LinkedIn account. LBCA’s staff all work from their own homes and meet virtually.
LBCA Mission and Vision
As the only organization in the US dedicated to Invasive Lobular Breast Cancer (ILC), LBCA’s mission is:
to make all who are touched by ILC aware of its unique characteristics and the critical need for more ILC research, to be the go-to source for information on ILC studies, clinical trials and educational tools, to foster partnerships among patients, scientists, clinicians and breast cancer organizations to increase dialogue about ILC and research advocacy, and to fund vital ILC research.
LBCA’s Vision is: a world in which lobular breast cancer is found early, treated effectively, and eradicated permanently.
Development Director Position Summary
Reporting to and in partnership with the Executive Director (ED), the Development Committee, the Chief Operating Officer (COO), and the Communication Director (CD), the Development Director (DD) will create a development plan to help us launch our non-profit. The Development Director will work with the ED to determine the funding needed for our operations, to enable us to start making small ILC research grants and to assess our current donor capacity to grow our organization.
Essential Duties and Responsibilities
The DD must have experience in all disciplines of a development operation and will have the following duties and responsibilities:
- Work both independently and advise and collaborate with the ED on a comprehensive fundraising strategy to support LBCA’s operations, growth, mission, and vision.
- Prioritize all activities in conjunction with the ED.
- Provide expert guidance on the strategy, content, and execution of electronic and direct mail fundraising appeals and campaigns.
- In partnership with the ED, execute LBCA’s annual development plan, annual report, and annual development goal setting.
- Develop and lead a strategy for implementing a major gifts program that includes major donor identification, discovery, cultivation, and solicitation for outright and planned gifts as well as building a pipeline of new donors, including corporations and foundations. The DD will additionally acquire mailing lists of potential donors, as needed, providing liaison with a direct mail vendor. The DD will develop a stewardship plan, including implementation and oversight of gift acknowledgement procedures and donor recognition.
- Propose and install best practices and novel fundraising vehicles including virtual and in-person events such as Jeffersonian dinners.
- Manage the donor database (Bloomerang) including uploading new and updating existing donor information, ensuring automated acknowledgement and thank you correspondences occur timely (within 72 hours of gift receipt), identifying and tracking donors who have made tribute gifts, and effectively managing a Moves Management process including an organized notes process, and developing and producing quarterly development metrics.
- Work with the ED and manage a portfolio of prospective major donors and supporters including creating cultivation plans for top 25 major gifts prospects, arranging and attending meetings in-person and virtually with donors to establish effective communications and relationships with them. Identify major gift donors who are ready for solicitation and create solicitation plans.
- Assist ED in working with LBCA’s scientific advisory board to develop and implement special “meet the experts” and other conversations with major and potential major donors.
- Help ED with the design and implementation of a strategy for an ongoing process for identifying grant support and with the oversight of staff or contractors engaged in researching appropriate potential grantors, proposal writing, and tracking and developing documents in compliance with reporting requirements.
- Help establish a process for outreach to pharmaceutical companies.
- Assist the ED and COO working with LBCA volunteers seeking to conduct fundraising events, peer-to-peer fundraisers, and other fundraising activities on behalf of LBCA. It will be essential to be able to have sufficient and effective fundraising strategies without live events.
- Work with/guide the ED and Communications Director on the development of effective fundraising messaging and dissemination through LBCA’s social media and other formats.
- Collaborate with the ED to develop and track metrics for quarterly evaluation of development impact including quarterly performance goals.
- Convene and oversee the LBCA volunteer development committee with support from the COO.
- The Development Director will participate in LBCA staff meetings and speak with the ED at least once/week on a 1:1 basis, and more often, as necessary.
The ideal development director candidate:
- Must embrace the mission of LBCA and have great interest in understanding the science of breast cancer and acquiring and maintaining knowledge of the status of ILC research and the advocacy activities that are provided by LBCA
- Must be entrepreneurial, highly self-motivated, energetic, a good listener and enjoy developing relationships
- Has knowledge and extensive experience in fundraising techniques, especially with major donor cultivation and including initiating donor emails, visits, and fundraising calls, particularly with major gift fundraising, and experience with large electronic and postal fundraising appeals and working with electronic donor databases (ideally with Bloomerang)
- Has experience working with direct mail vendors, managing the analytics of postal mail campaigns, and finding/working with acquired donor lists
- Displays a positive attitude, shows concern for people and community, demonstrates presence, self-confidence, and common sense
- Must possess strong interpersonal and writing skills and the skills to work with and motivate staff, committee members, and other volunteers
- Is organized and exhibits “follow through” on tasks and goals
- Have had experience in fundraising for a non-profit health care or cancer care organization and significant experience with major donor gifts
- Have had experience helping to launch one or more new non-profit organizations
- A bachelor’s degree (MA a plus)
- 15 years+ experience in professional fundraising, individuals with experience in launching non-profits preferred
Interested candidates should submit resume and cover letter to Mason Mitchell-Daniels at firstname.lastname@example.org.