Welcome to the LBCA

The Lobular Breast Cancer Alliance (LBCA) is a national network of patient-advocates with lobular breast cancer working with breast cancer researchers and clinicians.  LBCA advocates for ILC research and educates about lobular breast disease.

LBCA’s mission is to bridge patients, clinicians and researchers to increase our knowledge of lobular breast disease and promote research that leads to advances in prevention, diagnosis, treatment and patient follow-up care.

LBCA’s Goals

Advance ILC Research, including ILC specific and inclusive clinical trials and studies to better understand this disease and find targeted therapies

Link patients with ILC to research advocacy opportunities as patient advocate partners and participants

Build partnerships with breast cancer organizations and institutions to integrate ILC into existing breast cancer services, resources and research

Educate key audiences and raise awareness about ILC and ILC metastatic disease


LBCA is run by a volunteer steering committee of patients with lobular breast cancer living throughout the United States and led by two volunteer coordinators.  LBCA is advised by an international Scientific Advisory Board and a Scientific Editorial Board of researchers and clinicians who focus on lobular breast cancer.  We utilize contractors and consultants to supplement our efforts and provide expertise.  LBCA was formed by patient advocates who attended the First International Lobular Breast Cancer Symposium held in Pittsburgh, PA in fall 2016.  After the Symposium, patients developed a white paper outlining patient advocate identified needs for research in lobular breast cancer which serve as the basis of advocacy for LBCA.   More about LBCA’s leadership.

Funding and Organization

LBCA is funded by donations from patients and individuals who are impacted by lobular breast cancer, and contributions from foundations and other 501 c3 not for profit organizations.  We are a fiscally sponsored organization and have 501 (c)(3) tax exempt status as a project of Social and Environmental Entrepreneurs (SEE), a registered public charity.  Donations to LBCA are tax-deductible.  Learn more about LBCA’s fiscal sponsor and its mission to incubate and cultivate promising new organizations with the potential to make meaningful change.  If you have questions and would like more information, please contact us at info@lobularbreastcancer.org.


LBCA c/o SEE 23532 Calabasas Road, Suite A  Calabasas, CA 91302        info@lobularbreastcancer.org
Find us on Facebook and Twitter @LobularBCA

Please Join Us!

LBCA welcomes patients with ILC, the clinicians who treat us and the researchers who are working to find cures, prevent our disease and refine treatments.  Please join us!  Please subscribe to receive periodic News and Updates by email and learn about new ILC resources and opportunities to advocate and be involved.  Find us on Facebook and Twitter @LobularBCA

Thank you for joining us!  We hope that by working together, we can elevate lobular breast cancer and advance research to improve outcomes for patients diagnosed with this disease.



Download a one-page handout about LBCA to share.