WELCOME TO THE LBCA
The Lobular Breast Cancer Alliance (LBCA) engages patients, clinicians and researchers to increase knowledge of lobular breast disease and promote lobular breast cancer research. LBCA was founded by a national network of patient-advocates with invasive lobular breast cancer (ILC) working with a scientific advisory board of breast cancer researchers and clinicians. Who we are.
LBCA’s mission is to bridge patients, clinicians and researchers to increase our knowledge of lobular breast disease and promote research that leads to advances in prevention, diagnosis, treatment and patient follow-up care.
LBCA provides a platform for ILC research, maintains a library of current lobular breast cancer studies and identifies clinical trials and research advocacy opportunities with a focus on lobular breast disease. LBCA also provides basic educational information about early stage and metastatic lobular breast cancer to enhance understanding about how lobular is different from other breast cancer sub-types, and empower patients to be more informed partners in their self-care and treatment.
Advance ILC research, including ILC specific and inclusive clinical trials and studies to better understand this disease, refine treatments for patients and find targeted therapies
Link patients with ILC to research advocacy opportunities as patient advocate partners and study participants
Build partnerships with breast cancer organizations and research institutions to integrate ILC into existing breast cancer services, resources and research
Educate key audiences and raise awareness about ILC and ILC metastatic disease
About the Organization
LBCA’s staff include volunteers with lobular breast cancer from all over the United States. LBCA is advised by an international Scientific Advisory Board and a Scientific Editorial Board of researchers and clinicians who focus on lobular breast cancer. We utilize contractors and consultants to supplement our efforts and provide expertise. LBCA was formed by patient advocates who attended the First International Lobular Breast Cancer Symposium held in Pittsburgh, PA in fall 2016. After the Symposium, patients developed a white paper outlining patient advocate identified needs for research in lobular breast cancer which serve as the basis of advocacy for LBCA.
LBCA is funded by patients and individuals who are impacted by lobular breast cancer and contributions from foundations and other 501 (c)(3) not for profit organizations. We are a fiscally sponsored organization and have 501 (c)(3) tax exempt status as a project of Social and Environmental Entrepreneurs (SEE), a registered public charity. Donations to LBCA are tax-deductible. Learn more about LBCA’s fiscal sponsor and its mission to incubate and cultivate promising new organizations with the potential to make meaningful change.
If you have questions or would like more information, would like to inquire about volunteer opportunities or patient advocacy, or if you are a researcher interested in collaboration please contact us at firstname.lastname@example.org.
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