Resources for Patient Advocates
Based on feedback from the last Symposium in 2024 and with guidance from our ILC Symposium 2026 Advocate Planning Committee, we have prepared a set of readings, trainings and resources for you to watch and/or review prior to the 2026 ILC Symposium.
You can click on the links below to watch the videos and or you will be taken to great background documents on ILC you can read.
LBCA ILC Training Curriculum with advocate Q &A
LBCA worked with Scientific Advisory Board members and other ILC researchers and clinicians to compile the following comprehensive training for patient advocates on invasive lobular carcinoma (ILC) aka lobular beast cancer offered in four parts. Topics include the biology, treatment, imaging and surveillance of ILC. Following that are other webinars or documents that we thought would be good background.
- Early Stage Lobular Breast Cancer & Unanswered Questions
- Understanding ILC’s Unique Biology and Pathology
- Surgical Treatment of Lobular Breast Cancer
Readings for ILC Symposium 2026 and about ILC
Note: A compilation of the backgrounds on the topics and presenters at each session in lay language written by patient advocates is being provided separately in a PDF to advocate attendees pre-symposium. It will be added to the website here when the ILC Symposium recordings are posted and made available to all.
Other recommended readings include the following.
- Lobular Breast Cancer Statistics published Oct 2025 by ACS
- SEER ILC Cancer STAT Facts published in Oct 2024 and updated annually
- LBCA Liquid Biopsy Fact Sheet
Video Resources for Preparing to Attend a Scientific Conference/Read ILC Studies
- Reading Research Articles and Posters – a focus on SABCS 2021 pleomorphic ILC by SAB member Megan Kruse who is now the head of the Cleveland Clinic breast cancer program and their ILC program
- Intro to Cancer Basic Science and Immunology – presented by Dr. Ramlah Nehring, past board member, and Dr.Sasha Stanton, our founder’s breast oncologist and Project Lead lecturer who herself was diagnosed with ILC in 2025
Links to Basic Training About Breast Cancer Research Advocacy
- A basic training series on demand for free through the Research Advocacy Network (RAN). You register for free on their site and can then watch the webinar series on basic research advocacy here and register here.
- Webinar on What is Research Advocacy presented by 2021 head of the Dana Farber Research Advocate group Liz Frank