LBCA Advocacy Toolkit

LBCA has developed an ILC Advocacy Toolkit.  Our goal is to empower interested patients, caregivers, clinicians and researchers to join our efforts to educate others about ILC and support efficient research in lobular breast cancer.

Please explore these opportunities to identify the activities right for you and Inquire about becoming an LBCA Volunteer.  Please check back – LBCA will expand this toolkit as we develop materials.

Two ways to Advocate for ILC:

  • Information on Lobular Breast Cancer can be hard to find in traditional breast cancer institutions and organizations.  Advocates and allies can elevate lobular breast cancer in your local cancer community and help educate others about the disease.  Get tips on how to educate others and raise awareness about ILC...

  • A research advocate can be a patient, caregiver, survivor or co-survivor who has an interest in the science behind breast cancer research.  Research advocacy focuses on involving advocates in cancer research to make sure research reflects patient needs and outcomes. Learn about Research Advocacy and explore training opportunities...

Advocacy and Education Tools

The links below contain educational information and printable materials that can be downloaded and used as handouts at conferences, meetings or events.

ILC and Breast Cancer Educational Resources and Handouts:

  • LBCA's Frequently Asked Questions (FAQs) is designed for patients, caregivers and others interested in more information about Lobular Breast Cancer. ...

  • One of the most important ways a patient can advocate for their own care is to learn about their disease. There are many organizations and websites available to help patients learn more about breast cancer.  ...

  • Invasive Lobular Breast Cancer is the sixth most diagnosed cancer of women in the US. Recent research has highlighted opportunities to better understand this disease and improve the diagnosis, treatment and follow-up care for thousands of patients with ILC....

LBCA Materials & Information to Share:

  • Please spread the word about the Lobular Breast Cancer Alliance by downloading and printing LBCA materials for conferences, meetings and events....

Current ILC Clinical Trial and Research Opportunities:

  • Women who have been diagnosed with Stage 1 - 3 invasive lobular breast cancer (ILC) who have not yet had surgery to remove their tumor may be eligible to participate in a clinical trial.  This trial is open to all ER+ and/or PR+ HER2- patients (ductal or lobular), however it is being enriched with lobular breast cancer patients to promote a better understanding of how ILC might respond differently to these therapies....

  • Postmenopausal women who have been diagnosed with invasive lobular breast cancer (ILC) who have not yet had surgery to remove their tumor may be eligible to participate in a multi-site clinical trial. This clinical trial will compare how lobular breast tumors respond to three different commonly prescribed, effective medications that are currently being used to treat breast cancer.  ...

  • Patients with Metastatic Lobular Breast Cancer (cancer has spread beyond the breast to other parts of the body) have a unique opportunity to advance critical research by participating in the Metastatic Breast Cancer Project's ILC initiative....