The Lobular Breast Cancer Alliance (LBCA) is pleased to announce the creation of a Patient Advocate Advisory Board (PAAB). In 2017, LBCA was founded by patient advocates who raised their voices, demanding that this unique breast cancer subtype get the attention it needed. The PAAB will ensure that the patient perspective continues to be integral to LBCA’s work.
PAAB members will provide feedback on how well LBCA activities support the organization’s mission from a patient perspective. This includes participating in the annual strategic planning process, helping LBCA to be effective at creating educational materials that are accessible to diverse LBCA patient populations and reaching those audiences, and providing general guidance to LBCA from a patient advocate perspective on the impact and effect of LBCA activities and initiatives.
PAAB members are people who have had or have lobular breast cancer and/or their loved ones. Ideally, PAAB membership will reflect individuals affected by all stages of invasive lobular carcinoma (ILC) and will represent the age, racial and ethnic, and geographic diversity of the broader LBCA community.
The inaugural group of PAAB members include: Janice Axelrod, Ann Gottbrath Camden, Shay Chawla, Irene A. Jamieson, Gitte H. Joergensen, Julia Katherine Levine, Nancy MacGillivray, Judy McDevitt, Christine McKay, Flora Migyanka, Barbara Neilsen, Nina-Marie Opene, Suzanne Szul, and Bette Weaver.
New PAAB member recruitment will be conducted annually as needed.