Understanding Lobular Breast Cancer: Updates on Research, Treatment, Resources, and Support
LBCA Patient Advocate and Volunteer Treasurer, Julie Ray, will be one of two patient panelists on an Atrium Health webinar dedicated exclusively to lobular breast cancer — alongside fellow Local Advocacy Team (LAT) member Kathie Nejberger. An Atrium breast oncology professional will present the clinical science, and Julie and Kathy will share the patient perspective. Below is a detailed explanation of the session.
Understanding Lobular Breast Cancer: Updates on Research, Treatment, Resources, and Support
Join Us for an Informative Online Session
If you have been diagnosed with invasive lobular carcinoma (ILC) breast cancer, this session is designed for you. Learn how ILC differs from other breast cancer types, what that means for detection and treatment, and how current research is shaping care today and in the future.
This session is open to patients, care partners, staff, and anyone who wants to better understand invasive lobular carcinoma breast cancer. You will hear from clinical experts as well as people affected by ILC, offering both medical updates and lived experience.
What Is Invasive Lobular Carcinoma (ILC)?
Invasive lobular carcinoma (ILC) is a type of breast cancer that accounts for about 10–15% of breast cancer diagnoses in the United States. It begins in the lobules, the milk‑producing glands of the breast, and has the ability to spread into nearby breast tissue and beyond.
ILC cells tend to spread in thin lines rather than forming a firm lump. This pattern can make ILC harder to detect on routine imaging and may lead to diagnosis at a later stage than some other breast cancers. Symptoms can be subtle and may include breast fullness, thickening, or changes in breast shape rather than a distinct mass. ILC is also more likely to affect more than one area of the breast or, in some cases, both breasts.
Because much breast cancer research and education has focused on ductal cancer (IDC), some people with lobular breast cancer may feel that available information does not fully reflect their experience. As research grows, care, education, and support for ILC continue to improve.
Why This Session Matters
ILC can go into remission, especially when found and treated early. Some people reach complete remission, while others may manage ILC over time with ongoing treatment. Therapies such as endocrine treatment or other medications may help control the disease, reduce the risk of progression, and support quality of life.
Because ILC may behave differently and may return later, understanding long-term follow-up care is important. Staying informed about research and new treatment options can also help you make informed decisions about your care plan.
What You’ll Learn
- How ILC differs from other breast cancers and why it matters
- Symptoms, detection challenges, and imaging considerations
- Updates on research and treatment, including long‑term care
- Insights from people living with ILC
- Questions to ask your care team
- Support, education, and advocacy resources