LBCA Team
The Lobular Breast Cancer Alliance (LBCA) Team consists of dedicated staff and volunteers
LBCA has a small staff team. This includes an executive director who is a lobular breast cancer survivor and found her calling to lead as she interacted with LBCA volunteers and founders during her own medical odyssey. In addition, LBCA works closely with two founding patient advocate volunteers who have explicit roles with LBCA.Â
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Laurie Hutcheson, MS, ILC Patient Advocate & Executive Director of LBCA, has been a leader in health care program development, management and strategic direction in organizations in Massachusetts and nationwide for over 40 years. Laurie received her MS in health policy and management in 1989 from Harvard University, T.H. Chan School of Public Health. Her experience includes executive roles including deputy assistant secretary of health and human services in the Massachusetts executive office of health and human services, and vice president of Riverside Community Care, a large community-based behavioral health organization. She has also consulted in the design, implementation, and evaluation of health care programs around the country, with her own consulting practice and as a Fellow with the National Academy for State Health Policy. More …
Mason Mitchell-Daniels, MPH, MSW, Chief Operating Officer and Volunteer Coordinator, has 15 years of experience working in the fields of health policy and public health. She has a dual interest in direct service and public policy, which led her to begin her career training in social work and public health. Throughout her career in policy, Mason has worked in positions focused on bringing stakeholder voices to the table. In her work with volunteers and as COO, Mason assists LBCA in expanding its reach as a powerful advocacy organization.
Amie Kolodziej, MA, Director of Communications, has decades of experience in marketing and communications for national and international organizations. Amie has an extensive background in strategic content development, communications and event management for nonprofit organizations in diverse industries and causes, and has focused her career supporting mission-driven organizations. She has a BS in Communications from CSU, and a Masters in Nonprofit Organizational Management from Johns Hopkins University.
Suzie Cook Kinsellagh, Major Gifts Officer, is an accomplished fundraising professional with over 30 years of experience in all aspects of Development including stewardship, major gifts, annual fund, communications, donor relations, volunteer management and strategic planning. Most of her experience has been in hospital development, spending 25 years at Brigham and Women’s Hospital. During that time, she worked on various fundraising initiatives related to oncology and also, personally experienced breast cancer. Throughout her career, she has volunteered with many organizations related to breast cancer and compassionate care. She continues to carry on that passion as a staff member of the Lobular Breast Cancer Alliance and is excited to help raise money for such an amazing organization. Suzanne has been impressed with LBCA and what has been accomplished over such a short period of time and is looking forward to future milestones.
Kathleen Moss, BCHN, Local Advocacy Team (LAT) Coordinator, lives and works in Northwest Oregon. She is passionate about serving minority groups within the breast cancer community such as those who have opted for flat closure and those who have been diagnosed with invasive lobular carcinoma. She serves as an ambassador for Stand Tall AFC as well as holding this new role with LBCA. She is committed to the kind of activism that would allow for more awareness of lobular breast cancer in the clinical setting for the sake of newly diagnosed patients as well as the need for more research.
Megan Medeiros, JD, General Counsel on a volunteer basis, is a tax attorney working at Cambridge Associates in Boston, MA, in the alternative asset industry. She has experience with the formation of U.S. and non-U.S. private equity funds and secondary transaction deal management. Her practice focuses on primary, secondary, and co- investment funds within a wide range of alternative asset strategies – such as venture capital funds, buyout funds, fund-of-funds, secondary funds, hedge funds, and other investment partnerships – for a diverse range of investors. Prior to joining Cambridge Associates, she worked as an associate at Proskauer Rose, a law firm located in Boston, where she specialized in U.S. federal income tax for private equity funds. She received her BA in History and Philosophy at the University of Rhode Island and her JD from University of Connecticut School of Law, where she was an Editor on the Connecticut Law Review. She has prior experience advising non-profit organizations on tax-exemption matters.
Julia Katherine Levine, our Lead Research Advocate and Publications/Clinical Trials Curator, is a metastatic breast cancer survivor and a founding member of LBCA. She is committed to advocating, researching, and educating patients, clinicians, and others about lobular breast cancer and in particular, metastatic lobular breast cancer. She has created and presented an educational webinar on metastatic ILC for the Komen Metastatic Breast Cancer conferences. More…
Janice Axelrod, our Research and Communication Officer, is a retired physician gynecologic oncologist, who devoted her professional life to treating women with gynecologic malignancies and was a member and principle investigator of the Gynecology Oncology Group, a research group for gynecologic malignancies. Now retired and a lobular breast cancer survivor, she is focused on breast cancer research advocacy. Her interests include research, patient education, and reaching out to clinicians about lobular breast cancer. More …
