Advocate Registration Open ILC/Breast Cancer Education Course July 12-14, Boston

UPDATED June 13 2018:  Advocates attending are welcome to join LBCA at a no-host meet and greet dinner on Friday night after the reception – 7:00.  LBCA will also host a planning meeting on Saturday afternoon after the conference adjourns from 3:45 – 5:00 pm.  We hope patient advocate attendees and our LBCA supporters can join one or both of these activities.  Join us on the Boston2018 discussion thread at breastcancer.org for more information, or email info@lobularbreastcancer.org.

Lobular Breast Cancer (ILC) and the Lobular Breast Cancer Alliance will be featured on the final day of Harvard Medical School’s annual comprehensive breast cancer educational course.  Patient advocates for ILC are invited to register for and attend this event at a discounted rate.

Breast Cancer: New Horizons, Current Controversies

July 12 – 14, 2018

Boston Marriott Long Wharf in Boston, MA

See the Course Agenda and Register

This three-day annual course is organized as an educational opportunity for oncologists, oncology nurses, nurse practitioners and other health care providers interested in the care of women with breast cancer.

Lobular Breast Cancer will be the focus of this course on Saturday July 14th.  The Saturday lobular-specific agenda will include:

Immunotherapy in Breast Cancer

ER+ Breast Cancer with a Special Focus on ILC

Imaging, Pathology and Surgery

Biology and Special Subtypes

The Lobular Breast Cancer Alliance and the Importance of Patient Advocacy in Clinical Research

How to Register for this Course as an Advocate

Sharable image for Patient Advocate and ILC forums

Patient advocates must register directly through the Breast Cancer: New Horizons, Current Controversies registration page.   Advocates can attend the full three-day breast cancer educational course, or the Saturday July 14 ILC sessions only.

Advocates who register can enter DISCOUNT50 on the payment page under discount code for a special patient advocate registration rate of $50. This code is intended for PATIENT ADVOCATES ONLY. When completing the registration form, advocates can select “other” in their profile under medical specialty and profession, and may also write in a hospital affiliation “LBCA” if needed.  The discount code DISCOUNT50 must be entered all caps.

Please review the Course Website for comprehensive course description and agenda, online registration and to find information about hotel discounts and course location.

Patient Advocates: PLEASE READ BEFORE REGISTERING

What is a Patient Advocate for ILC?

A patient advocate can be a patient, caregiver, survivor or co-survivor of ILC who is working to advance research and improve patient outcomes for current and future patients. Patient advocacy can take many forms:

  • Research advocates partner with researchers and institutions
  • Educator advocates share information about ILC in their communities, online or within breast cancer organizations to raise awareness and share quality information about ILC
  • Peer mentors partner with qualified support services to help other patients one-on-one
  • Fundraisers support outreach and ILC research by raising money to support critical needs
  • Public policy advocates work to change health policy.

LBCA welcomes all established patient advocates as well as those who are interested in becoming new patient advocates for ILC. We will share more information about ILC patient advocacy opportunities in the coming months.

Why attend this Educational Session?

Patient advocates who attend can learn about the science and clinical care of lobular breast cancer.   They will meet other patient advocates working to advance research and patient care for ILC from around the country. They will learn about the Lobular Breast Cancer Alliance and how to get involved to advance ILC research and patient outcomes.

How much will it cost to attend?

Patient advocates receive a special discounted registration rate, however because LBCA is a new organization and only recently eligible to fundraise there are no scholarships available to assist with travel to Boston or hotel costs.  Please respect that this discount code is provided to make this conference accessible for Patient Advocates Only.  Medical professionals seeking professional CME credits should register and pay the appropriate fees.

LBCA has set up a thread on BreastCancer.org for anyone interested in finding roommates.  For those who can’t attend, we are working with course organizers to videotape the Saturday July 14 ILC portion of this event and hope to make the content of the ILC Sessions available online in our Resource Library.

What Patient Advocates can Expect

Please know that this event is NOT an appropriate forum to seek personal medical advice from course faculty or attendees, or receive personal medical consultations. All patient advocates will be expected to REFRAIN FROM ASKING FOR PERSONAL MEDICAL ADVICE ABOUT THEIR DIAGNOSIS OR COURSE OF TREATMENT.

About the Course Content

Advocates should be aware that this course is created for and the content is tailored to physicians and trained health care workers and the curriculum and presentation is not geared for general patient education.

Patient Advocate Gatherings

LBCA plans to facilitate opportunities to gather advocates on Friday night July 13th and Saturday afternoon July 14th.   We hope you will be able to join. We will communicate more details to registrants closer to the event.

Questions?

LBCA has set up a thread on BreastCancer.org  (https://community.breastcancer.org/forum/71/topics/863557?page=1#post_5174907 ) for anyone attending who is interested in finding roommates.  LBCA will use this forum to answer questions and facilitate conversations with advocates who would like to learn more and attend.  LBCA can be reached by email at info@lobularbreastcancer.org.

Please contact course organizers directly if you have problems registering on the website: CEPrograms@hms.harvard.edu or call (617) 384-8600 Monday–Friday, 9 am–5 pm (ET).  Questions about hotel reservations only can go directly to Claudia_Cassano@dfci.harvard.edu.