Beginning in 2018, LBCA Founder Leigh Pate and Founding SAB Member Steffi Oesterrich led the design and conduct in 2021 of a survey of the worldwide community of lobular breast cancer researchers and patient advocates to develop consensus around priority areas for collaborative lobular breast cancer research. The results of the survey were just published in npjBreastCancer in a research article titled “International Survey on Invasive Lobular Breast Cancer Identifies Priority Research Questions”

In the article, the authors note there is growing awareness in the scientific and medical community of the unique etiology, biology, and clinical presentation of invasive lobular breast cancer (ILC), but more research is necessary to translate findings into management and treatment g­uidelines. To address this, a survey was conducted to solicit input from breast cancer physicians, laboratory-based researchers, and lobular breast cancer patients to analyze the current understanding of ILC, and identify consensus questions for prioritizing ILC research. The results of the survey are expected to contribute to the international lobular breast cancer scientist and patient community efforts to collaborate on a priority research agenda for getting to the most effective strategies for improving management and personalizing treatment for patients with ILC. To read the full article click here.

LBCA ED Laurie Hutcheson noted, “Publication of the results of this study is especially meaningful given Leigh’s involvement in this foundational and far reaching work for ILC research and LBCA’s mission to eradicate ILC.”