The Lobular Breast Cancer Alliance

NBCC 2024 Advocate Leadership Summit and Lobby Day
2024-05-04 - 2024-05-07 | Park Hyatt Hotel, 1201 24th St NW, Washington, D.C., 20037
Join NBCC for the 2024 Advocate Leadership Summit in Washington, DC, May 4-6, at the Park Hyatt Hotel. This will be followed by Lobby Day on May 7. The Summit is the National Breast Cancer Coalition’s premier annual breast cancer advocacy event. Attendees will have the opportunity to attend discussion sessions with top researchers and advocates, as well as skill-building, message training, and strategic planning activities.

A small number of scholarships are available to current NBCC members who are interested in assistance for: travel, hotel, or registration. Apply here. The deadline to apply is March 4, 2023.

2024 ASCO Annual Meeting
2024-05-31 - 2024-06-04 | McCormick Place, 2301 S King Dr, Chicago, IL, 60616
Join more than 40,000 oncology professionals from around the world at the 2024 ASCO Annual Meeting. Stay up to date on new clinical cancer advances in every area of cancer research, gain real-time insights from world-renowned faculty, and connect with one of the largest, most diverse audiences in global oncology—in person or online.
2024 ASCO Annual Meeting will feature over 200 sessions in line with—The Art and Science of Cancer Care: From Comfort to Cure—the presidential theme set by Dr. Lynn M. Schuchter, MD, FASCO, 2023-2024 ASCO President.
Why You Should Attend:

Plenary Session, featuring practice-changing and clinically relevant abstract presentations and discussion
Opening Session, featuring the Presidential Address and Karnofsky Award and Lecture
Two In-Person Workshops: Genomics 101 for Oncologists and Navigating Communication with Seriously Ill Patients (Registration required, in-person only)
ASCO Plenary Series: Rapid Abstract Updates
State-of-the-art Education Sessions in each track
21 Case-Based Panels, featuring interactive audience polling
Joint Sessions with FDA, NCI, AACR, and ECO
24 Oral Abstract Sessions, featuring over 250 oral abstract presentations
16 Clinical Science Symposia, including 3 special cross-cutting sessions
NEW! 24 Rapid Oral Abstract Sessions
Over 2,000 Poster presentations, including Trials in Progress

LBCA Lobular Breast Cancer Chat: Biomarkers as tools in ILC
2024-06-17 18:00 - 19:00 (America/New_York) | Virtual
LBCA is excited to invite you to our next Lobular Breast Cancer Chat Series event on biomarkers as tools in ILC. Please join us to learn more about this topic and hear about related research in the field by LBCA Scientific Advisory Board member Dr. Peter Simpson and his colleague Dr. Amy McCart Reed from the University of Queensland. Please register for this event using this link. After completing the registration form, you will be added to a Google Calendar Invitation which contains the Zoom link for the event. The recording of the presentation portion of the event will be shared in a future newsletter for those that cannot attend.

ESMO Congress 2024
2024-09-13 - 2024-09-17 | Barcelona, Spain

2024 International ILC Symposium
2024-09-23 - 2024-09-25 | Leuven, Belgium, Leuven, Belgium
Save the date for the International Invasive Lobular Breast Cancer (ILC) Symposium. The event will take place in Leuven, Belgium from September 23-25, 2024.

Terminal Tower in Cleveland, Ohio Lights Up Pink for Lobular Breast Cancer Awareness Day
2024-10-14 | Terminal Tower, Cleveland, OH, United States
In commemoration of the inaugural Global Lobular Breast Cancer Awareness Day Terminal Tower in Cleveland, Ohio will light up pink on October 14th.

Lobular Breast Cancer Awareness Day event in Texas
2024-10-15 | Ontario
In support of the inaugural Lobular Breast Cancer Awareness Day in Texas, an in-person invitation-only event is being organized by LBCA Board of Directors Chair, Dr. Jason Mouabbi.

Lobular Breast Cancer Awareness from Hoag
2024-10-15 | Hoag, Orange County, CA, United States
In support of the Global Lobular Breast Cancer Awareness Day during Breast Cancer Awareness month, Hoag issued a press release in support of awareness raising for Lobular Breast Cancer. Click here to read the full release.

Lobular Breast Cancer awareness event in New Mexico - 6:30pm MDT
2024-10-15 | Trails West Community Center, Las Cruces, NM, United States
In commemoration of the inaugural Global Lobular Breast Cancer Awareness Day event, an event will be held at the Trails West Community Center in Las Cruces, NM. A presentation will be given about early detection, risk and prevention, the difference between IDC and ILC and ILC research.
October 15th 6:30pm to 8:30pm MDT
The public is welcome, and refreshments will be served.

Lobular Breast Cancer Awareness event in Missouri, 7:00am-12:00 noon CDT
2024-10-15 | Imaging for Women, 630 NW Englewood Road, Kansas City, MO, United States
In commemoration of the inaugural Global Lobular Breast Cancer Awareness Day, This Little Light will hold an awareness event at Imaging for Women, at 630 NW Englewood Road in Kansas City, MO at 7:00am – 12:00noon CDT.

Colorado Lobular Breast Cancer Awareness Day Event - 8:00am - 12:00 noon MDT
2024-10-15 | University of Colorado Anschutz Medical Building, 1890 N Revere Ct, Aurora, CO, United States
In commemoration of the inaugural Global Lobular Breast Cancer Awareness Day, join Front Range ILC and the Sikora Lab for educational sessions including:

The State of ILC Research: ILC Research at CU/ Sikora Lab “Lightening Talks” and Meet-the-Scientists Session
Front Range ILC Advocacy Group Update / 2024 Int. ILC Symposium Update
Lobular Breast Cancer research fund in action
Sikora Laboratory Tour

In-person with breakfast or virtual attendance options.

Lobular Breast Cancer conference by Lobular Breast Cancer UK
2024-10-15 | Lobular UK, United Kingdom
In recognition of the inaugural Global Lobular Breast Cancer Awareness Day an in-person conference will be convened by Lobular Breast Cancer UK including clinicians, researchers and health professionals focusing on recognition of invasive lobular carcinoma (ILC) in UK treatment guidelines.

Mini ILC Symposium at UMC Utrecht - 1:00pm CET
2024-10-15 | UMC Utrecht – Princess Máxima Center for Pediatric Oncology – PMC, Heidelberglaan 25, Utrecht, Netherlands
In commemoration of the inaugural Global Lobular Breast Cancer Awareness Day, the UMC Utrecht is organizing an afternoon conference in Utrecht together with the Erasmus Medical Center, the Netherlands Cancer Institute-Antoni van Leeuwenhoek and Maastricht UMC+ . There will be speakers from research, healthcare and patient organizations.
The congress is organized with the support of the European Lobular Breast Cancer Consortium and the Lobular Breast cancer Alliance. This afternoon symposium is intended for: patients (and relatives), patient organizations, (bio)medical professionals, care providers and nursing staff.
Registration is required and possible up to the last day. There are no costs involved. Send an email with your name and the number of people who will be present to ILCsymposium@umcutrecht.nl
For the complete details visit the UMC Utrecht website here.
October 15th, 1pm-6pm CET
Program

13.00 – 13.30
Reception
13.30 – 13.40
Welcome and introduction
Agnes Jager (Medical Oncologist/session leader, Erasmus MC)
13.40 – 14.00
The biology of Invasive Lobular Breast Cancer
Patrick Derksen (Medical Biologist; UMC Utrecht, ELBCC)
14.00 – 14.20
ILC histopathology and diagnosis 2.0
Paul van Diest (Pathologist, UMC Utrecht)
14.20 – 14.40
Invasive lobular breast cancer, always an MRI scan?
Thiemo van Nijnatten (Radiologist, Maastricht UMC)
14.40 – 15.00
Can it be less?
Marjolein Smidt (Surgeon, Maastricht UMC)
15.30 – 16.10
Diagnosis Lobular breast cancer, and what now?
Rian Terveer-Couperus (Patient Advocate, ELBCAdvocates & ELBCC) together with Sabine Linn (Medical Oncologist, NKI/AvL)
16.10 – 16.20
Lobular Breast Cancer Foundation. Makes information and research possible
Rian Terveer-Couperus and Esther Geven (Patient Advocates, ELBCAdvocates & ELBCC)
16.20-17.00
Q&A on ILC; research, diagnosis, and treatment.
An interactive session with scientists, practitioners, and patient advocates

Lobular Breast Cancer Webinar by Lobular Ireland and Irish Cancer Society - 12:30pm IST
2024-10-15 | Lobular Ireland, Ireland
In commemoration of the inaugural Global Lobular Breast Cancer Awareness Day, Lobular Ireland have teamed up with Irish Cancer Society to host a Webinar focusing specifically on unique aspects of #LivingWithLobular with one of our Patient Advocates Margaret Walsh and Breast Cancer Researcher from The Royal College of Surgeons, Damir Vareslija.

Web Conference Le 15 Octobre in France - 12:00pm EDT
2024-10-15 | Ontario
In commemoration of the inaugural Global Lobular Breast Cancer Awareness Day on October 15th a web conference on lobular breast cancer will be held as an initiative of LBCA, the Institut des Cancers des Femmes and Ku Leuven in partnership with organizers Patients en Reseau, Mon Réseau cancer du Sein and Dis moi Santé.

More details at the website below.

Lobular Breast Cancer Awareness Raising at the Cleveland Clinic, Ohio
2024-10-15 | Cleveland Clinic, 10201 Carnegie Ave, Cleveland, OH, United States
In recognition of the inaugural Lobular Breast Cancer Awareness Day on October 15th educational materials on lobular breast cancer and giveaways will be distributed.

Lobular Breast Cancer Virtual Presentation at Dana-Farber Cancer Institute - 11:00am EST
2024-10-15 | Dana-Farber Cancer Institute, MA, United States
Join us in commemoration of the inaugural Lobular Breast Cancer Awareness Day in Massachusetts as part of Breast Cancer Awareness Month for a virtual presentation on October 15th at 11:00am EST from the Dana-Farber Cancer Institute. Hear from Dana-Farber clinicians, patient advocates and LBCA Executive Director Laurie Hutcheson about the importance of raising awareness of lobular breast cancer, a distinct breast cancer type that may not form a lump, can be missed on mammograms and is often diagnosed later when tumors are larger.
This virtual event is open to the public at the link below.

University of Queensland Lobular Breast Cancer Webinar - 1:00pm AEST
2024-10-15 | University of Queensland, 308 Queen St, Brisbane City, Australia
Join Associate Professors Pete Simpson and Amy McCart Reed of the University of Queensland for a webinar in celebration of Global Lobular Breast Cancer Awareness day.
Chaired by Professor Sunil Lakhani, a world-renowned breast pathologist, we will discuss the latest in research, treatment and diagnosis specifically relating to lobular breast cancer.
Featured speakers:

Professor Sunil Lakhani, Group Leader UQ Centre for Clinical Research; Executive Director for Research, and Breast pathologist, Pathology Queensland.
Associate Professor Pete Simpson, Theme leader for Cancer and Group Leader UQ Centre for Clinical Research; Senior Lecturer MD program
Associate Professor Amy McCart Reed, Senior Principal Research Fellow, UQ Centre for Clinical Research. Amy is working to understand the molecular basis of Lobular breast cancer – in particular what makes it a special type.
Dr Anna Sokolova, Consultant Pathologist, MPhil candidate, Breast Cancer Trials Fellow. Anna is working to understand if there is the potential to repurpose some targetted therapies in lobular breast cancer.
Dr Tivya Kulasegaran, Consultant Medical Oncologist, MPhil candidate, Breast Cancer Trials Fellow. Tivya is working to identify a liquid biopsy to better detect recurrence.

Read the full details here and please click here to Register to Attend

Webinar for Clinicians about Lobular Breast Cancer in Brazil - 7:00pm - 8:30pm BRT
2024-10-15 | Brazil, Brazil
In commemoration of the inaugural Global Lobular Breast Cancer Awareness Day a virtual webinar for clinicians about Lobular Breast Cancer will be held in Brazil and is open to clinicians around the word.

Topic: Global Lobular Breast Cancer Awareness Day
Date: 10/15/2024 (Tuesday)
Time: 7:00 PM – 8:30 PM (BRT)
Event language: English

Speakers and Agenda:

• 7:00 PM – 7:15 PM: Dr. Guilherme Nader Marta, Advanced Clinical Fellow, Breast Oncology Center, Dana-Farber Cancer Institute
Topic: Oncology Perspective
Objective: Clinical oncologist’s view on epidemiology, molecular characterization, and comparative evidence of systemic therapies between ILC and IDC.

• 7:15 PM – 7:30 PM: Dr. Susan C. Lester, Former Chief, Breast Pathology Services, Brigham and Women’s Hospital, Associate Professor, Harvard Medical School
Topic: Pathology Updates
Objective: Diagnosis of ILC, new classification proposal of classical vs. non-classical ILC, and the challenges of non-classical subtypes.

• 7:30 PM – 7:40 PM: Dr. Linei Urban, Radiologist, DAPI Clinic, Curitiba; Vice-President, Paraná Radiology Society; Cultural Director, Brazilian College of Radiology
Topic: Radiology Challenges
Objective: Issues in diagnosis, early disease staging, follow-up for metastatic disease, and assessing treatment response.

• 7:40 PM – 7:50 PM: Dr. Adelina Sanches, Nuclear Medicine Specialist, Santa Izabel Hospital
Topic: Role of Nuclear Medicine
Objective: How nuclear medicine contributes to diagnosis, staging, and monitoring of breast cancer, promoting precise treatment.

• 7:50 PM – 8:00 PM: Dr. Francisco Pimentel, Mastologist, Brazilian Society of Mastology (SBM)
Topic: Surgical Aspects
Objective: Impact of histological type on surgical decisions and safety of conservative surgery in ILC patients.

• 8:00 PM – 8:30 PM: Debate
Moderator: Dr. Aline Coelho Goncalves, Oncologist, Oncoclinicas&CO – Rio de Janeiro; Clinical Research Physician, Oncoclinicas Institute
Interactive Q&A Session: Audience engagement after presentations.

The event will be held online.
Zoom Link: https://us02web.zoom.us/j/86845788263?pwd=[REDACTED]

Toronto Stock Exchange Market Open Reception and Brunch & Learn - 9:00am EDT
2024-10-15 | Toronto Stock Exchange, 100 Adelaide St. West, Toronto, Ontario, M5H 0B3, Canada
Commemorating the inaugural Global Lobular Breast Cancer Awareness Day on October 15th:
October 15th, 9:00am EDT
9:00 am Market Open Reception
Includes Welcome remarks, celebratory toast and congratulations before the opening countdown.
10:00am Brunch & Learn about lobular breast cancer treatment and research with Guest Speakers:
Clinical Experience of Lobular Breast Cancer
Dr. Christine Brezden-Masley, MD PhD FRCPC, Medical Oncologist, Mount Sinai Hospital; Professor, Temerty Medicine, University of Toronto; Medical Director, Cancer Program at Sinai Health System; Director, Marvelle Koffler Breast Centre, Marvelle Koffler Chair in Breast Research
Lobular Research Now and on the Horizon
Dr. David W. Lim, MDCM, MEd, PhD, FRCSC, Medical Director, Henrietta Banting Breast Centre, Women’s College Hospital; Assistant Professor, Department of Surgery, University of Toronto

Registration required for the in-person event here: Toronto Stock Exchange Oct. 15th event registration
To view the livestream click here: https://www.youtube.com/live/DopJJX0z1PQ

Lobular Breast Cancer Awareness Event in Portland, Oregon - 12:00pm PT
2024-10-15 14:00 - 16:00 | Starbucks, 4500 NE Glisan Street, Portland, OR, United States
In commemoration of the inaugural Global Lobular Breast Cancer Awareness Day, join LBCA Local Advocacy Team (LAT) Coordinator, Kathleen Moss and Dr. Sasha Stanton, Medical oncologist from Providence Cancer Institute to learn about Lobular Breast Cancer:

October 15th 12:00 – 2:00pm PT

Meet us at Starbucks across from the Providence Franz Cancer Center at 4500 NE Glisan Street in Portland, Oregon.

Lobular Breast Cancer Virtual Town Hall from Memorial Sloan Kettering
2024-10-16 13:30 | Memorial Sloan Kettering Cancer Center, NY, United States
This town hall is a free educational event for our community. Everyone is welcome, register at the link below.

Breast Cancer Awareness Community Health Fair in Maryland
2024-10-19 | Ontario
LBCA Local Advocacy Team (LAT) LAT DMV: Delaware, Maryland and Virginia are participating in a breast cancer awareness community health fair in Maryland and will be on hand providing materials about lobular breast cancer. The fair is located at the Tanger Outlets in National Harbor, MD.
The fair will be held on October 19th, 11am – 3pm, the Tanger Outlets are located at 6800 Oxon Hill Road in National Harbor, Maryland.

Hope In Harmony Benefit Concert
2024-10-26 | Hope in Harmony, Moorestown, NJ, United States
To help commemorate the inaugural Global Lobular Breast Cancer Awareness Day and to benefit the Lobular Breast Cancer Alliance, a benefit concert has been organized by LBCA Board of Directors member, Kathy Krantz showcasing performances by The Jersey Sound Chorus, Children Song of New Jersey, Shades of Harmony, Philadelphia Freedom Chorus, and Rittenhouse Sound.
Saturday, October 26th 1:30pm
For complete details and to purchase tickets, click on the website link below.

Alamo Breast Cancer Foundation Advocate Program
2024-12-10 - 2024-12-13 | Henry B. Gonzalez Convention Center, 900 E. Market Street, San Antonio, TX, 78205, United States

San Antonio Breast Cancer Conference (SABCS) 2024
2024-12-10 - 2024-12-13 | Henry B. Gonzalez Convention Center, 900 E. Market Street, San Antonio, TX, 78205, United States
The 47th annual San Antonio Breast Cancer Symposium® is coming up soon. Join nearly 11,000 researchers, clinicians, patient advocates, and supporters from around the world who will shape the future of breast cancer research and care, December 10-13 in San Antonio, Texas.

Cure Breast Cancer Summit
2025-03-08 | FountaineBlue Miami Beach, Miami Beach, FL, United States
CURE®’s Educated Patient® Breast Cancer Summit is a full-day event, hosted in conjunction with the 42nd Annual Miami Breast Cancer Conference.® It will be held at the historic Fontainebleau Miami Beach on Saturday, March 8, 2025.
This summit will provide patients, survivors and caregivers with the latest research and information on standards of cancer care, emerging therapies, and general wellness.

National Breast Cancer Coalition (NBCC) 2025 Advocate Leadership Summit
2025-05-03 - 2025-05-06 | Park Hyatt Hotel, 1201 24th St NW, Washington, D.C., 20037
The 2025 Advocate Leadership Summit is in Washington, DC, May 3-5, at the Park Hyatt Hotel.  The Summit is the National Breast Cancer Coalition’s premier annual breast cancer advocacy event. The Summit offers discussion sessions with top researchers and advocates, as well as skill-building, message training, and strategic planning activities to energize us for the important work in the year ahead.

National Breast Cancer Coalition - Project Lead
2025-07-27 - 2025-08-01 | Estancia La Jolla Hotel & Spa, La Jolla, CA, United States
NBCC’s Project LEAD is the premier science training program for breast cancer advocates. At the annual Project LEAD Institute, students prepare to engage in a wide range of local and national forums where breast cancer decisions are made.
During the six-day course, renowned research faculty teach advocates the basics of cancer biology, genetics, epidemiology, research design, and advocacy, providing them with a foundation of scientific knowledge upon which they can strengthen and empower themselves as activists.
After completing the course, Project LEAD graduates bring an educated consumer perspective and critical thinking skills to the important issues and controversies in breast cancer, from reviewing research proposals for new treatment options to lobbying for research funding on Capitol Hill.

Lobular Breast Cancer Awareness in Washington at the Komen More Than Pink Walk
2025-09-27 | Woodland Park Zoo, 5500 Phinney Avenue N., Seattle, WA, United States
LBCA Patient Advocate Advisory Board member, LeAnne Nelson, will participate in the Komen More Than Pink Walk in Seattle, Washington on September 27th, as part of the October 15th Lobular Breast Cancer Awareness Day campaign. She will represent LBCA at a table and distribute educational materials on Lobular Breast Cancer.
Komen aims to raise $200,000 at the Seattle MORE THAN PINK Walk, generating critical funds that allow Komen to continue its investment in lifesaving work across the country, including promising research that will allow people to live longer lives with better outcomes. This event also funds Komen’s Patient Care Center, a trusted, go-to source for timely, accurate breast health and breast cancer information, support and resources, as well as the work of Komen’s Center for Public Policy to drive state and federal policies that invest in critical programs and ensure streamlined access to affordable, high-quality breast health care.
WHEN: Saturday, September 27, 2025 | Gates open at 9:30 a.m.
WHERE: Woodland Park Zoo, 5500 Phinney Ave. N., Seattle, WA 98103
WHO: Anyone who has ever been diagnosed with breast cancer, their family, friends and support network.
REGISTER: https://www.komen.org/seattlewalk
