Agenda: Lobular Advocacy Boot Camp Rescheduled

Updated March 16, 2020The 2nd International Lobular Breast Cancer Symposium (and day 1 – Lobular Advocacy Boot Camp) has been postponed until November 19-21, 2020 due to the Covid-19 Pandemic.  Please monitor for status updates, information on registration and logistics and event announcements and changes. Stay Tuned!  We will update any information about ILC Advocacy Bootcamp and the agenda as arrangements for this rescheduled event are available.


The Second International Lobular Breast Cancer Symposium will be held November 19-21, 2020 in Pittsburgh, PA. Definition of an advocate for lobular breast cancer

The first day of the Symposium Nov 19th will focus on advocate education with a Lobular Advocacy Boot Camp, organized by the Lobular Breast Cancer Alliance in collaboration with Susan B. Komen, the Metastatic Breast Cancer Network and LBCA’s organizational partners and supporters.

Lobular Advocate Boot Camp will be a day of learning tailored to patients, caregivers and others interested in learning about lobular breast cancer and how they can help advance lobular research and educate others about this disease.  During the day-long boot camp, advocates will learn about lobular breast cancer, lobular breast cancer research and different ways they can get involved in effective advocacy to advance research and educate about lobular breast disease. Learn more about advocacy bootcamp  and  REGISTER for Advocate Boot Camp or the full #Lobular2020 symposium.  Learn more about Breast Cancer Advocacy.  See the full agenda for the Symposium.

Preliminary Agenda

Lobular Advocate Boot Camp November 19, 2020

In the morning sessions, advocates will obtain a basic knowledge of biology, treatment and research
for lobular breast cancer. Speakers will be members of the LBCA Scientific Advisory and Editorial Boards and guest clinicians.

8:00- 8:15am Welcome to Lobular Advocacy Boot Camp hosted by the Lobular Breast Cancer Alliance

8:15-9:00am Overview: Basic Science and Biology of ILC
Discussion of how ILC differs from ductal cancer and why this matters in research, particularly to identify targeted therapies. Histology, pathology, subtypes and unique metastatic sites of ILC will be discussed.

Presenters:  Patrick W.B. Derksen, PhD University Medical Center Utrecht, Netherlands Department of Pathology and Jorge S. Reis-Fihlo, MD PhD FRCPath, Chief, Experimental Pathology, Memorial Sloan Kettering Cancer Center

9:15-10:00am Overview: Clinical Considerations of ILC
Discussion of the unique challenges of treating ILC and how research can help refine treatments. The challenges of imaging, surgery and treatment differences in ILC including the role of chemotherapy and endocrine therapies. Treatment resistance and metastatic ILC will also be discussed.

Presenters: Rachel C. Jankowitz, MD Associate Professor of Clinical Medicine in the Division of Hematology/Oncology at the Perelman School of Medicine at the University of Pennsylvania and Director of the Rena Rowan Breast Center at the Penn Abramson Cancer Center; Rita Mukhtar, MD Assistant Professor of Surgery, University of California, San Francisco; Gary A. Ulaner, MD, PhD,  Associate Attending Radiologist; Associate Member, Tenure-track Department of Radiology Memorial Sloan Kettering Cancer Center

BREAK 10:00 – 10:15am

10:15-11:00am Research
Discussion of types of research and clinical trials; study design and scientific literature. How research develops into new therapies and the challenges lobular researchers face including: funding, collaboration and under accrual of clinical trials.

Presenters: Steffi Oesterreich, PhD Professor and Vice-Chair of Pharmacology at the University of Pittsburgh, Director of Education at the Womens Cancer Research Center at UPMC Hillman Cancer Center and Magee Womens Research Institute; Otto Metzger, MD, Breast Oncology Center at Dana-Farber/Brigham and Women’s Cancer Center; Matthew J. Sikora, PhD, Assistant Professor of Pathology at the University of Colorado Anschutz Medical Campus

Q&A Panel – 11:00 -12:00pm

12:00 – 12:45pm NETWORKING LUNCH (lunch will be provided)

In the afternoon sessions, advocates will learn about different ways to become involved in breast cancer advocacy (research, social media, communications, and education). Speakers will be from the Lobular Breast Cancer Alliance, Susan B. Komen Advocates in Science, MBC Network and invited guest advocates.

12:45pm – 1:45pm Panel Discussion: Overview of Advocacy
Discussion of types of advocacy and why they are important to advance lobular breast cancer research, focusing on Education and Outreach, Communications/Social Media Advocacy/Research Advocacy


Three breakout sessions will be hosted by guest advocates and LBCA members. Each breakout sessions will be offered twice. Advocates can attend two sessions. Topics include:

A.  Research Advocacy   

B. Education and Outreach   

C. Communication and Social Media 

2:00 – 2:45pm Breakout Session #1
3:00 – 3:45pm Breakout Session #2

4:00 – 4:30pm Wrap-up: The Lobular Breast Cancer Alliance (LBCA) and how you can participate in the movement

4:30pm Adjourn


Note: Agenda subject to change 3/17/2020

* An advocate can be a patient, caregiver, family member or interested volunteer who wants to learn more about lobular breast cancer and use that knowledge to advance research, educate or help others impacted by lobular breast disease.